As most of you know I don’t talk very much about my disability online. But, I want to tell you all about a very special project that I have decided to help with. In previous posts I have mentioned that I have Osteogenesis Imperfecta (OI), which is a rare bone disorder that makes my bones fracture easily.
So how rare is OI? It depends who you ask, but I can say that I am not the only one. In fact there is a vibrant community of us on and off the internet. Two of my old friends with OI are Adam and Kara Ayers. Kara, earned her PhD in Clinical Psychology in 2011, and represented the US in the 2004 Paralympics in Greece. Adam is active in the adaptive sports community as a recreation therapist. Both have been strong advocates of healthy active lifestyles for people with disabilities.
You would think that such an amazing couple couldn’t get any cooler! But then in 2010 they had a beautiful little girl named Hannah. By sharing their experience online they then began to redefine what it means to be parents, by demonstrating that through an adaptive spirit and a parents love, anyone can start a family.
Now, they have decided to take their family one step further with the adoption of a new little boy named Eli. Eli is 6 years old and has Achondroplasia, which is the most common form of dwarfism. Currently, Eli, lives in an orphanage for children with disabilities in China. Children with dwarfism face adversity no matter where they are. However, in China, Eli will likely not be allowed to attend school, live outside of an institution or in some cases become homeless as he gets older.
The Ayers are the perfect parents to not only bring Eli to the US, but to nurture a positive sense of self that so many children with disabilities never realize.
Adam and Kara have already proven to the world that they are capable of pretty much anything. However, adopting Eli will be a rather large finical undertaking. They are estimating that they will need at least $25,000 to bring Eli to his new home. Therefore they are fundraising online to make this task a little easier. They have already sold some of their personal belongings to get closer to their goal, but they still need our help.
My pledge: I will match any donation up to $2,500 in total donations.
With your help we can raise $5,000 to help bring Eli to his new home. Here’s how you can help with this goal:
- Visit the Ayer’s donation web site.
- Make a tax deductible donation.
- Contact me with the amount you donated so I can match it!
UPDATED 11/12/2013 10:50am EST: We are currently at a total of $4,437!! Thank you all for your donations! We are only $563 away from our goal!
UPDATED 11/4/2013 12:00pm EST: We are currently at a total of $4,092!! Thank you all for your donations! We are only $908 away from our goal!
Personal Note: I am currently very happy with my life. I have an awesome job, amazing friends, and a loving family. While it has been hard work, I know I wouldn’t be where I am today with out the support of my family, friends, and the amazing communities I am a part of. If you can relate to that experience at all, help us transfer that goodwill on to Eli, lets give him the same type of support that we have received.